• Skip to primary navigation
  • Skip to main content
  • Skip to footer

RAIRDA HomepageRAIRDA

The Rare Autoimmune Rheumatic Disease Alliance

  • About us
    • Our members
    • About RAIRDs
    • Our board
    • Our story
  • What we do
    • Our priorities
    • A Quality Standard for Rare Disease
    • Publications
  • News
  • Get involved
    • Personal Stories
    • Share your story
    • Campaign for us
  • Contact us
  • Search

RAIRDA is an alliance bringing together patient organisations to campaign for improved care for people living with rare autoimmune rheumatic diseases in the UK

Our top priorities:

  • Quicker and more effective processes for diagnosis
  • Better access to treatments – including new and innovative drugs across the UK
  • Better co-ordination of care
  • Improving access to specialist care and knowledge within the NHS workforce
  • Reducing inequalities in access to high quality care and treatment.

Over 160,000 people with rare autoimmune rheumatic diseases like Lupus, Scleroderma, Sjögren’s disease and Vasculitis live in the UK.

Source

(Peach, E., Rutter, M., Lanyon, P., Grainge, M., Hubbard, R., Aston, J., Bythell, M., Stevens, S. and Pearce, F., 2020. Risk of death among people with rare autoimmune diseases compared with the general population in England during the 2020 COVID-19 pandemic. Rheumatology, 60(4), pp.1902-1909.)

Around 1 in 1,000 people have some form of lupus in the UK.

Source

Lupus UK website

Featured RAIRD story

Dalila: “With lupus, you don’t know when your next flare will be.” 

Read more

Latest

29 Apr 2025

Rare Care Matters: The struggle to access diagnosis and care for rare autoimmune rheumatic disease patients

22 Nov 2024

COVID-19 Seasonal Vaccination Programme: Autumn/winter 2024/25 – What people with RAIRDs need to know

10 Sep 2024

Email your local MP to speak up for people with rare autoimmune rheumatic conditions

22 Apr 2024

RAIRDA Survey 2024 Participant Information Sheet

Read more news

Our Members

Footer

  • Twitter

Problem retrieving data from Twitter

Twitter error code: 215 - Bad Authentication data.

Please check the Twitter name in the widget or shortcode, Rotating Tweets settings or the Twitter API status.

Contact us

We use cookies to collect and analyse information on site performance and usage and to ensure that we give you the best experience on our website.Allow all cookiesRefuse cookies
You can revoke your consent any time using the revoke consent button.Revoke consent