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RAIRDA HomepageRAIRDA

The Rare Autoimmune Rheumatic Disease Alliance

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    • The Rare Diseases Quality Standard
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RAIRDA is an alliance bringing together patient organisations to campaign for improved care for people living with rare autoimmune rheumatic diseases in the UK

Our Members

NICE Quality Standard for Rare Disease now published!

Our top priorities:

  • Quicker and more effective processes for diagnosis
  • Better access to treatments – including new and innovative drugs across the UK
  • Better co-ordination of care
  • Improving access to specialist care and knowledge within the NHS workforce
  • Reducing inequalities in access to high quality care and treatment.

Over 160,000 people with rare autoimmune rheumatic diseases like Lupus, Scleroderma, Sjögren’s disease and Vasculitis live in the UK.

Source

See source here

Around 1 in 1,000 people have some form of lupus in the UK.

Source

See Lupus UK website here

Featured RAIRD story

Dalila: “With lupus, you don’t know when your next flare will be.” 

Read more


Latest

27 Feb 2026

NICE Quality Standard for Rare Disease published

27 Oct 2025

RAIRDA: our calls for the next Welsh Government 

8 Jul 2025

RAIRDA’s statement on the 10-Year Health Plan for England 

29 Apr 2025

Rare Care Matters: The struggle to access diagnosis and care for rare autoimmune rheumatic disease patients

Read more news

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