If you or someone you know is living with a rare autoimmune rheumatic disease, we’d love to hear from you.
Living with a rare disease can often be an alienating experience and stories like yours can provide support and information for countless others going through a similar experience. Beyond this, your story can help raise awareness of the experiences of people living with RAIRDs to ensure rare diseases remain on the public and political agenda.
Please get in touch with us if you would like to share your story or would like some more information, and we will be very happy to help you.
There are 2.5 million people worldwide who are living with scleroderma, including around 19,000 within the UK.Source
Share your story
If you’d prefer to email in your story, please write to email@example.com