The Rare Autoimmune Rheumatic Disease Alliance (RAIRDA) is the first dedicated body linking both clinical and patient organisations, providing a strong voice to campaign for improved care for people living with rare autoimmune rheumatic diseases.
We exist to provide a single, strong voice that will raise the profile of this group of conditions, influence policy and guide future research.
Since we were formed, our work has shown some alarming disparities in the quality of care and treatment received by people living with rare autoimmune rheumatic diseases. It is vital we have equality of care and treatment for this group, prevalence should not be the determinant of outcomes for patients.Sue Farrington, Co Chair of RAIRDA
To find out more about the impact of these conditions, their unmet needs in accessing timely and effective healthcare and what can be done to improve care for patients with RAIRDS you can read our latest report below.
Around 9,000 people will be diagnosed with vasculitis (including Behcet’s), scleroderma, lupus or primary Sjögren’s syndrome every year.Source