We are committed to driving improvements in the quality of care for people with rare autoimmune rheumatic conditions nationwide.
We work with patients, clinicians and other stakeholders to carry out research and recommend policy change. Through our research we endeavour to share insights on how policy can best support our patient group to access the care they need to manage their condition.
Some of our recent reports have focused on the impact of COVID-19 for people living with RAIRDs, healthcare and delivery, access to treatments, and recommendations for improved care.
We also conduct surveys, produce briefings and respond to consultations which you can find below.
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