Sue: “When you do understand it, you can learn to live with it and to deal with it”
– Scleroderma
Maryann: “I was a fighter. I guess my body was so used to my ‘warrior’ attitude that it decided to fight itself too”
– Lupus
Dave: “I honestly don’t believe my GP fully understands my situation – he doesn’t have time”
– Vasculitis
Susie: “Every morning when I wake up, I wonder what kind of day it will be”
– Sjogren's syndrome
Dalila: “With lupus, you don’t know when your next flare will be.”
– Lupus
Avtar: “Setting up this amazing group has definitely been worth it”
– Scleroderma
Sara: “It was daunting to have to self-manage without much information so early in the scleroderma journey”
– Scleroderma
Teresa: “It is comforting to meet people who understand”
– Sjogren's syndrome
Pam: “It’s been difficult to accept that I can no longer do things that I used to love doing”
– Sjogren's syndrome
Margot: “I had a lot of people telling me it was all in my head”
– Sjogren's syndrome
Una: “I’ve had to be my own advocate”
– Scleroderma
Sarah: “Furlough support was too late to help me”
– Vasculitis
This website uses only essential cookies to ensure functionality. These cookies are strictly necessary for the website to operate and do not track your browsing activity beyond the site.I understand
