Campaign for us

Campaigning with RAIRDA is a great way to use your voice to raise the profile of rare diseases.

Rare Disease Day

This Rare Disease Day, RAIRDA is calling on you to email your representative to ask them to advocate for people living with RAIRDs. Click here to find out more about how you can help #ResetTheBalanceForRairds.

Mailing List

By signing up to join our mailing list, you can use your voice to make our campaign work stronger and help us bring about real change.

You’ll receive access to email updates full of campaign news and opportunities to get involved. Examples include: writing to your MP, sharing your experiences, taking part in surveys and helping us with our social media campaigns.

Your voice matters.

People with RAIRDs had a 54% increased risk of COVID-19 infection and more than twice the risk of COVID-19-related death compared to the general population.

Source

Wincup, C., Amarnani, R. and Giles, I., 2021. O22 Evaluating the impact of COVID-19 on patient access to rheumatology services, medication and future care: a nationwide study of more than 2,000 patients. Rheumatology, 60(Supplement_1

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