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The Rare Autoimmune Rheumatic Disease Alliance

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Campaign for us

Campaigning with RAIRDA is a great way to use your voice to raise the profile of rare diseases.

By signing up to join our mailing list, you can use your voice to make our campaign work stronger and help us bring about real change.

You’ll receive access to email updates full of campaign news and opportunities to get involved. Examples include: writing to your MP, sharing your experiences, taking part in surveys and helping us with our social media campaigns.

Your voice matters.

People with RAIRDs had a 54% increased risk of COVID-19 infection and more than twice the risk of COVID-19-related death compared to the general population.

Source

Wincup, C., Amarnani, R. and Giles, I., 2021. O22 Evaluating the impact of COVID-19 on patient access to rheumatology services, medication and future care: a nationwide study of more than 2,000 patients. Rheumatology, 60(Supplement_1

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The @APPG_VGP is calling for evidence and responses from patients, hospitals, patient groups, charities, clinicians, academics and private companies, to look at the experience of the #Forgotten500k immunocompromised patients during the pandemic. appg-vulnerablegroups.org/new…

GIRFT has worked with RAIRDA to develop the pathways for Giant Cell Arteritis (GCA) and Connective Tissue Disease. All 4 pathways support clinicians to provide the best patient care, and allow patients and commissioners to see what they can expect from a service. twitter.com/NHSGIRFT/statu…

It's great to see RAIRDA's policy paper and the stories of people with RAIRDs receive coverage in Personnel Today, the Daily Express, the Daily Record and the Daily Mirror today. personneltoday.com/hr/call-to…

RAIRDA have produced a Q&A document to address misconceptions and common questions about COVID vaccinations for people with RAIRDs. rairda.org/vaccines-misco…

Despite visiting her GP on several occasions, it took Georgina over 18 months to reach a diagnosis. We urgently need a quicker and more effective diagnostic journey for people with RAIRDs.#RAIRDA #ResettingtheBalance rairda.org/resetting-the-…

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