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Useful links for patients and clinicians on COVID-19 vaccination

RAIRDA’s member charities have published their own guidance aiming to answer some of the most common questions people have raised about their condition and COVID-19 vaccination:

  • LUPUS UK
  • British Sjogren’s Syndrome Association
  • Vasculitis UK
  • SRUK

Clinicians

For all types of clinicians supporting people with RAIRDs, the following document may be a useful:

  • Principles for COVID-19 Vaccination in Musculoskeletal and Rheumatology for Clinicians

NHS England and NHS Improvement musculoskeletal stakeholder group (which RAIRDA is a member of) led by National Clinical Director for Musculoskeletal, the specialised rheumatology clinical reference group, the Behaviour Change Unit and the British Society for Rheumatology COVID group, all input and reviewed the different iterations of this draft document.

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RAIRDA is calling on you to raise the profile of rare autoimmune rheumatic diseases in Parliament. Send our template letter to your local representative today and help #ResetTheBalanceForRAIRDs. rairda.org/get-involved/2…

It's great to see that the 2023 Rare Diseases Action Plan references the recommendations made in RAIRDA's #ResettingTheBalance report, and that it highlights the work being done on a quality standard for rare disease by the IAG to the UK Rare Diseases Forum. twitter.com/DHSCgovuk/stat…

Our co-chair @lanyon_peter attended the #RareDiseaseDay parliamentary reception yesterday. It was a great opportunity to meet with others from the rare disease community, and to hear from @GeneticAll_UK, @LizTwistMP and @Helen_Whately. @MBythell pic.twitter.com/gPRAFGNL51

Take action this #RareDiseaseDay by contacting your parliamentary representative to ask them to advocate for people with RAIRDs. Together, we can #ResetTheBalanceForRAIRDs. rairda.org/get-involved/r…

This #RareDiseaseDay, read about RAIRDA's plan for #ResettingTheBalanceForRAIRDs, and how you can get involved rairda.org/rare-disease-d…

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