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Charities and clincians urge Government to secure Evusheld

Over 120 clinicians representing 17 different clinical specialities, across all 4 nations, have released a clinical consensus statement saying that there is sufficient evidence that the Covid-19 preventative Evusheld would have clinical benefit to people who are immunocompromised, and a protective antibody treatment program should be delivered as soon as possible.

For many immunocompromised people, the first lockdown in 2020 never ended, which is why in addition to the clinical consensus statement, alongside 18 charities, including our member charities LUPUS UK and Vasculitis UK we have signed an open letter to Steve Barclay MP, urging the Government to buy Evusheld to protect the people they represent who remain vulnerable to Covid-19.

You can see the letter here:

Evusheld open charity letter 28.07.22Download

What can I do to help? 

We would like to request your help with this – we’ve written a template letter below that you can use to send to your MP asking them to write to the Secretary of State. You can find out who your local MP is and their contact details using the find your MP website.

Download our template letter to MPs below:
Template letter to MP’s Evusheld 27.07.22Download

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RAIRDA is calling on you to raise the profile of rare autoimmune rheumatic diseases in Parliament. Send our template letter to your local representative today and help #ResetTheBalanceForRAIRDs. rairda.org/get-involved/2…

It's great to see that the 2023 Rare Diseases Action Plan references the recommendations made in RAIRDA's #ResettingTheBalance report, and that it highlights the work being done on a quality standard for rare disease by the IAG to the UK Rare Diseases Forum. twitter.com/DHSCgovuk/stat…

Our co-chair @lanyon_peter attended the #RareDiseaseDay parliamentary reception yesterday. It was a great opportunity to meet with others from the rare disease community, and to hear from @GeneticAll_UK, @LizTwistMP and @Helen_Whately. @MBythell pic.twitter.com/gPRAFGNL51

Take action this #RareDiseaseDay by contacting your parliamentary representative to ask them to advocate for people with RAIRDs. Together, we can #ResetTheBalanceForRAIRDs. rairda.org/get-involved/r…

This #RareDiseaseDay, read about RAIRDA's plan for #ResettingTheBalanceForRAIRDs, and how you can get involved rairda.org/rare-disease-d…

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