RAIRDA is an alliance bringing together patient organisations to campaign for improved care for people living with rare autoimmune rheumatic diseases in the UK
Our top priorities:
- Quicker and more effective processes for diagnosis
- Better access to treatments – including new and innovative drugs across the UK
- Better co-ordination of care
- Improving access to specialist care and knowledge within the NHS workforce
- Reducing inequalities in access to high quality care and treatment.
Over 160,000 people with rare autoimmune rheumatic diseases like Lupus, Scleroderma, Sjögren’s disease and Vasculitis live in the UK.
Source(Peach, E., Rutter, M., Lanyon, P., Grainge, M., Hubbard, R., Aston, J., Bythell, M., Stevens, S. and Pearce, F., 2020. Risk of death among people with rare autoimmune diseases compared with the general population in England during the 2020 COVID-19 pandemic. Rheumatology, 60(4), pp.1902-1909.)
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