We have published a joint statement on the recent rise in COVID-19 cases in the UK. It concerns continuing care for rare autoimmune rheumatic diseases and shielding.
A team of researchers at University College Hospital London are currently looking in more detail at how COVID-19 has impacted people’s care and what patients would like their care to look like in future. Fill in their survey here.
In early May 2020 we surveyed people with rare autoimmune rheumatic diseases (RAIRDs) about their experiences during the COVID-19 outbreak so far. This survey asked people questions like whether they were shielding, how their care had been affected by the pandemic and how the pandemic had affected people’s household finances.
You can read the full report on this survey, published in June 2020, here.
What else can RAIRDA do to support patients?
Patients with a rare autoimmune rheumatic disease should always get in contact with the member charity for their condition if they have concerns about their individual condition or want advice or guidance.
However, if you believe there is a specific issue that we, as a campaign group, can bring to the government’s attention please do contact us.
If you would like to write to your MP, MSP, AM or MLA about any of the issues raised above, get in touch and we will happily send you some advice on writing to your local representative.