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The Rare Autoimmune Rheumatic Disease Alliance

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The @APPG_VGP is calling for evidence and responses from patients, hospitals, patient groups, charities, clinicians, academics and private companies, to look at the experience of the #Forgotten500k immunocompromised patients during the pandemic. appg-vulnerablegroups.org/new…

GIRFT has worked with RAIRDA to develop the pathways for Giant Cell Arteritis (GCA) and Connective Tissue Disease. All 4 pathways support clinicians to provide the best patient care, and allow patients and commissioners to see what they can expect from a service. twitter.com/NHSGIRFT/statu…

It's great to see RAIRDA's policy paper and the stories of people with RAIRDs receive coverage in Personnel Today, the Daily Express, the Daily Record and the Daily Mirror today. personneltoday.com/hr/call-to…

RAIRDA have produced a Q&A document to address misconceptions and common questions about COVID vaccinations for people with RAIRDs. rairda.org/vaccines-misco…

Despite visiting her GP on several occasions, it took Georgina over 18 months to reach a diagnosis. We urgently need a quicker and more effective diagnostic journey for people with RAIRDs.#RAIRDA #ResettingtheBalance rairda.org/resetting-the-…

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