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Rare Care Matters: The struggle to access diagnosis and care for rare autoimmune rheumatic disease patients

Almost one-third of UK patients face a five-year wait for diagnosis. Today, the Rare Autoimmune Rheumatic Disease Alliance (RAIRDA) has launched a new report, revealing...

COVID-19 Seasonal Vaccination Programme: Autumn/winter 2024/25 – What people with RAIRDs need to know

The information on this webpage has been based on this summary from our member organisation Lupus UK.  The NHS COVID-19 Seasonal Vaccination Programme: Autumn/winter 2024/25...

Email your local MP to speak up for people with rare autoimmune rheumatic conditions

In the light of the new Parliament, RAIRDA will continue to arrange meetings with, and promote our asks to, Members of Parliament and policymakers.  RAIRDA’s...

RAIRDA Survey 2024 Participant Information Sheet

RAIRDA’s 2024 Manifesto

This Rare Disease Day, RAIRDA is excited to launch our 2024 manifesto, which highlights our key calls for the next UK Government. Our key calls...

Rare Disease Day: Update From Sue Farrington

As Rare Disease Day approaches on the 28th of February, it’s a great opportunity to reflect on our journey towards #ResettingtheBalance for RAIRDs, and the...

Briefing: A Quality Standard for Rare Disease

The Independent Advisory Group (IAG) to the forum on the UK Rare Diseases Framework is chaired by RAIRDA co-chair, Sue Farrington. The IAG has produced...

Vaccines Misconceptions Q and A

RAIRDA have produced a question and answer document to address misconceptions and common questions about COVID vaccinations for people with RAIRDs.  The document is designed...

Resetting the Balance Report

The Rare Autoimmune Rheumatic Disease Alliance (RAIRDA) has released a report today highlighting ‘alarming disparities in the quality of care and treatment’ received by people...

Developing a Quality Standard for Rare Disease

RAIRDA is part of a working group exploring the development of a Quality Standard for Rare Disease, which will aim to improve the equity of...

Charities and clincians urge Government to secure Evusheld

Over 120 clinicians representing 17 different clinical specialities, across all 4 nations, have released a clinical consensus statement saying that there is sufficient evidence that...

Survey shows poor communication around COVID-19 vaccine and treatments for people with rheumatic conditions

We would like to thank everybody who took part in our survey of people with rheumatic conditions about the fourth coronavirus (COVID-19) vaccination dose. The...