As Rare Disease Day approaches on the 28th of February, it’s a great opportunity to reflect on our journey towards #ResettingtheBalance for RAIRDs, and the...
Briefing: A Quality Standard for Rare Disease
The Independent Advisory Group (IAG) to the forum on the UK Rare Diseases Framework is chaired by RAIRDA co-chair, Sue Farrington. The IAG has produced...
Vaccines Misconceptions Q and A
RAIRDA have produced a question and answer document to address misconceptions and common questions about COVID vaccinations for people with RAIRDs. The document is designed...
Resetting the Balance Report
The Rare Autoimmune Rheumatic Disease Alliance (RAIRDA) has released a report today highlighting ‘alarming disparities in the quality of care and treatment’ received by people...
Developing a Quality Standard for Rare Disease
RAIRDA is part of a working group exploring the development of a Quality Standard for Rare Disease, which will aim to improve the equity of...
Charities and clincians urge Government to secure Evusheld
Over 120 clinicians representing 17 different clinical specialities, across all 4 nations, have released a clinical consensus statement saying that there is sufficient evidence that...
Survey shows poor communication around COVID-19 vaccine and treatments for people with rheumatic conditions
We would like to thank everybody who took part in our survey of people with rheumatic conditions about the fourth coronavirus (COVID-19) vaccination dose. The...
RAIRDA launches fourth vaccination dose survey
RAIRDA and its member charities have launched a short survey aimed at all adults with a rheumatic condition in the UK. We want to understand whether...
Safe At Work: letter to employers, March 2022
We have published a safe at work letter for people with rheumatic diseases who are located in England and are at higher risk from Covid-19...
Take action against ending free COVID-19 testing kits
Join us in calling on the UK Government to continue free tests for people who are eligible for COVID-19 treatments, their families and close contacts....
MELODY Study: An Overview
The MELODY (Mass evaluation of lateral flow immunoassays for the detection of SARS-CoV-2 antibody responses in immunosuppressed people) study will use home antibody testing to understand how well immunocompromised...
Online survey – Steroid PRO study
Are you being treated with steroids for your rheumatic condition? We need your help to test a new questionnaire about steroid impact on quality of...
