• Skip to primary navigation
  • Skip to main content
  • Skip to footer

RAIRDA HomepageRAIRDA

The Rare Autoimmune Rheumatic Disease Alliance

  • About us
    • Our members
    • About RAIRDs
    • Our board
    • Our story
  • What we do
    • Our priorities
    • A quality standard for rare disease
    • Publications
  • News
  • Get involved
    • Personal stories
    • Share your story
    • Campaign for us
  • Contact us
  • Search

Arub Iqbal

Rare Disease Day: Update From Sue Farrington

As Rare Disease Day approaches on the 28th of February, it’s a great opportunity to reflect on our journey towards #ResettingtheBalance for RAIRDs, and the...

Briefing: A Quality Standard for Rare Disease

The Independent Advisory Group (IAG) to the forum on the UK Rare Diseases Framework is chaired by RAIRDA co-chair, Sue Farrington. The IAG has produced...

Vaccines Misconceptions Q and A

RAIRDA have produced a question and answer document to address misconceptions and common questions about COVID vaccinations for people with RAIRDs.  The document is designed...

Resetting the Balance Report

The Rare Autoimmune Rheumatic Disease Alliance (RAIRDA) has released a report today highlighting ‘alarming disparities in the quality of care and treatment’ received by people...

Developing a Quality Standard for Rare Disease

RAIRDA is part of a working group exploring the development of a Quality Standard for Rare Disease, which will aim to improve the equity of...

Charities and clincians urge Government to secure Evusheld

Over 120 clinicians representing 17 different clinical specialities, across all 4 nations, have released a clinical consensus statement saying that there is sufficient evidence that...

Footer

  • Twitter

Problem retrieving data from Twitter

Twitter error code: 215 - Bad Authentication data.

Please check the Twitter name in the widget or shortcode, Rotating Tweets settings or the Twitter API status.

Contact us