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The Rare Autoimmune Rheumatic Disease Alliance

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Vaccines Misconceptions Q and A

RAIRDA have produced a question and answer document to address misconceptions and common questions about COVID vaccinations for people with RAIRDs.  The document is designed...

Resetting the Balance Report

The Rare Autoimmune Rheumatic Disease Alliance (RAIRDA) has released a report today highlighting ‘alarming disparities in the quality of care and treatment’ received by people...

Developing a Quality Standard for Rare Disease

RAIRDA is part of a working group exploring the development of a Quality Standard for Rare Disease, which will aim to improve the equity of...

Charities and clincians urge Government to secure Evusheld

Over 120 clinicians representing 17 different clinical specialities, across all 4 nations, have released a clinical consensus statement saying that there is sufficient evidence that...

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The @APPG_VGP is calling for evidence and responses from patients, hospitals, patient groups, charities, clinicians, academics and private companies, to look at the experience of the #Forgotten500k immunocompromised patients during the pandemic. appg-vulnerablegroups.org/new…

GIRFT has worked with RAIRDA to develop the pathways for Giant Cell Arteritis (GCA) and Connective Tissue Disease. All 4 pathways support clinicians to provide the best patient care, and allow patients and commissioners to see what they can expect from a service. twitter.com/NHSGIRFT/statu…

It's great to see RAIRDA's policy paper and the stories of people with RAIRDs receive coverage in Personnel Today, the Daily Express, the Daily Record and the Daily Mirror today. personneltoday.com/hr/call-to…

RAIRDA have produced a Q&A document to address misconceptions and common questions about COVID vaccinations for people with RAIRDs. rairda.org/vaccines-misco…

Despite visiting her GP on several occasions, it took Georgina over 18 months to reach a diagnosis. We urgently need a quicker and more effective diagnostic journey for people with RAIRDs.#RAIRDA #ResettingtheBalance rairda.org/resetting-the-…

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