As Rare Disease Day approaches on the 28th of February, it’s a great opportunity to reflect on our journey towards #ResettingtheBalance for RAIRDs, and the...
Briefing: A Quality Standard for Rare Disease
The Independent Advisory Group (IAG) to the forum on the UK Rare Diseases Framework is chaired by RAIRDA co-chair, Sue Farrington. The IAG has produced...
Vaccines Misconceptions Q and A
RAIRDA have produced a question and answer document to address misconceptions and common questions about COVID vaccinations for people with RAIRDs. The document is designed...
Resetting the Balance Report
The Rare Autoimmune Rheumatic Disease Alliance (RAIRDA) has released a report today highlighting ‘alarming disparities in the quality of care and treatment’ received by people...
Developing a Quality Standard for Rare Disease
RAIRDA is part of a working group exploring the development of a Quality Standard for Rare Disease, which will aim to improve the equity of...
Charities and clincians urge Government to secure Evusheld
Over 120 clinicians representing 17 different clinical specialities, across all 4 nations, have released a clinical consensus statement saying that there is sufficient evidence that...
